Pages

Thursday, August 28, 2014

Some answers to your questions about our little man ~and an update ~Looking for Autism MOM business owners



Richie had a fun time at home last weekend ! Last week I did a grand total of 1,000 miles of driving between getting him , visiting , and 2 doctor apts ! That's the Autism life ! 


The changes with his seizure medication seemed to have a pretty dramatic effect in decreasing his behaviors ! He was taking Kepra for at least 8 years which is known to cause bad behaviors but at the same time after the doctors tried so many different ones,  it was the only one that worked . He recently did a 16 week wean from the Kepra and is almost done . At the same time they introduced a new medicine called Topamax and its working great so we are keeping our fingers crossed ! 


This week on the school front I have finally made tremendous progress with the IEP ! We did get it (although dated wrong lol) but new one will be here shortly.  I can finally take a deep breath for a little bit for the very first time in a decade! Richie will be getting everything he needs !!! Thanks to the help of the BSEA and a wonderful woman I spoke with at the Federation yesterday! 

Richie got his hair cut and went to the Barber ! He did a great job ! 



Throw back Thursday Pics, Richie was just a little over one years old above  ! Below He was about 3 1/2 and the baby is my little Sky ! 



Questions I often get :

1. What types  of medications is Richie taking ? 


Richie is on several medications and we are always in the process of eliminating them when we can . From an Autism severe behavior point of view despite the possible dangers of some medications , the danger he causes to himself and others is much more significant . 


Richie is on:

 Topomax- for his seizures 

Abilify and Guanfacine- for behaviors (these work quite well for him and he has zero side effects . 

Levacarnitine- For his tummy (it's just a natural supplement) 

Trazedone- For sleep 

Most of these are given several times a day . 


2. What is his diet like?


As of right now he is not on the Maria diet lol although we are slowly working our way back . The wonderful supervisor at the residence does an amazing job shopping for him , and although not always organic he eats tons of fruits, vegies, salads . He eats the snacks I bring him . He only eats whole grain pastas and breads . No Red meat . He has actually helped make the whole house a little healthier ! Lots of work to slowly be done but it's going rather well! 


Looking for a couple Autism mom business owners to feature here on the blog , just send me an email and I will pick the best fits <3 Click here to send me an email







No comments:

Post a Comment